Welcome to Disability & Determination! My name is Jackie and I live with a rare form of muscular dystrophy. I was diagnosed when I was really young, so I’ve never known anything other than the experience I live everyday. I have a very visible limp and now use a walker, but often still have to justify my disability to the outside world.
The goal of this newsletter is to tell my story and share the struggles and joys of living with a rare physical disability. I hope it can be a platform to educate people and to show that disability can look many different ways. I also hope to share other impactful stories I hear on my journey to accepting all of myself, including my disability.
I’m an avid reader and a lover of all things pop culture, so there will very likely be smatterings of that in what I write here too.
A few other random facts about me:
I love Los Angeles (despite not living there) and terrible reality TV
I just saw the Star Wars movies for the 1st time about 5 years ago (and I love them all)
I freelance copy edit (so if you need any help with your newsletter or something you’re writing, please reach out!)
Why Subscribe?
Subscribing to Disability & Determination delivers the newsletter straight to your inbox and ensures that you won’t miss any new content.
I usually send out posts once a week, but I’m very much a “write as I’m inspired” Substacker, so there may be more or less depending on what’s going on. I also offer a paid subscription now that includes an extra monthly post.
If you missed a newsletter or recently signed up, you can access previous posts in the archive.
Is it Free?
My weekly posts are free. Paid subscribers will get access to my extra monthly newsletter.
