Disability and Determination is a weekly newsletter about my experience living with a rare disability…with a little bit of meditation, pop culture, and other random things thrown in.
Happy birthday Jackie!!! So glad you strutted proudly in with “Red”. I hope you don’t mind me saying “strut”… I’m picturing you going in there with gumption!
I love the acceptance you now have and the pride and the knowing and the confidence that comes with it 😍
That energy work sounds like some healing❤️🩹 I’ve been having deep healing bodywork massage therapy monthly for 5 years. It’s opened doors to healing that I never knew existed. Something I’ve considered a major player in my road to recovery for the last few years.
Funny that we associate disability with ugliness. And energy workers as someone out to get you. I was questioned for my choices early on and even my therapist was scrutinised (what’s he doing approaching a middle aged woman I was asked).
Even though I am as well as I am now, loved ones still remain skeptical. It’s a bizarre world we’ve created. I’m so glad I found the courage to walk a different path. Which was all born out of the most harrowing of times.
Well after my energy session, the energy healer did try to sell me some magic potion to help/cure my disability so some of the skepticism is warranted I think. I’ve run into that a lot where people think they have some magic cure for me like being cured is even what I need. But I digress, I still got something out of it so I consider it a win. I don’t really have a lot of energy healer options where I live and there was something about doing it in Sedona that’s kind of made for that type of thing that made it the perfect place to do it. So I don’t think I’ll be continuing it unless I go back there.
That’s so great you found some bodywork massage therapy that helps! Taking care of your body. We have to find whatever works best for us and our bodies for healing and pain relief and feeling good, that’s for sure.
Yikes, that does sound a bit dodge. I’ve wanted to write a post called the incurable cure for years but the words are not yet there for me to be able to articulate what I want to say.
Seeking to manage, control, fix, cure hasn’t been part of my vocabulary on this journey (to the point I wonder if that’s been my biggest win?).
Checking in with needs and wants is where I started (after 20’years of suffering).
My most desperate need was for support (took me a while to realise this was of the emotional kind); someone to gift me their time. Both unmet needs from childhood.
When I met my bodywork therapist, he didn’t have anything at all to say about chronic illness or my beliefs I could heal myself. It was this that made me believe he knew what he was on about😆😂 He was the only person I’d met that didn’t have an opinion - of any kind. He listened. A massive healing in itself💜
I’m so glad I found you! What a great post. I write about living with Parkinson’s so I understand the challenge of hiding it and owning it. I always keep in mind that I’m not obliged to tell my story to anyone. If they earn it, cool. It helps separate out the riff raff 😜
Thank you for the mention. ‘Woo woo’ made me giggle, I’m very naturally sceptically and that tends to override my, also natural, curiosity. It’s a hard juggle indeed.
Woo hoo on the woo woo! I'm so glad you had such a wonderful trip, Jackie. Congratulations on it all. xo
Thank you! ❤️
Happy birthday Jackie!!! So glad you strutted proudly in with “Red”. I hope you don’t mind me saying “strut”… I’m picturing you going in there with gumption!
Thank you so much! And don't mind one bit. I like to think I was strutting too 😊
I think it’s a fabulous word! Why shouldn’t we strut if we can? I find I’m a bit more plonk than strut these days - but I’m working on it!
I love the acceptance you now have and the pride and the knowing and the confidence that comes with it 😍
That energy work sounds like some healing❤️🩹 I’ve been having deep healing bodywork massage therapy monthly for 5 years. It’s opened doors to healing that I never knew existed. Something I’ve considered a major player in my road to recovery for the last few years.
Funny that we associate disability with ugliness. And energy workers as someone out to get you. I was questioned for my choices early on and even my therapist was scrutinised (what’s he doing approaching a middle aged woman I was asked).
Even though I am as well as I am now, loved ones still remain skeptical. It’s a bizarre world we’ve created. I’m so glad I found the courage to walk a different path. Which was all born out of the most harrowing of times.
Will you continue with energy work do you think?
Well after my energy session, the energy healer did try to sell me some magic potion to help/cure my disability so some of the skepticism is warranted I think. I’ve run into that a lot where people think they have some magic cure for me like being cured is even what I need. But I digress, I still got something out of it so I consider it a win. I don’t really have a lot of energy healer options where I live and there was something about doing it in Sedona that’s kind of made for that type of thing that made it the perfect place to do it. So I don’t think I’ll be continuing it unless I go back there.
That’s so great you found some bodywork massage therapy that helps! Taking care of your body. We have to find whatever works best for us and our bodies for healing and pain relief and feeling good, that’s for sure.
Yikes, that does sound a bit dodge. I’ve wanted to write a post called the incurable cure for years but the words are not yet there for me to be able to articulate what I want to say.
Seeking to manage, control, fix, cure hasn’t been part of my vocabulary on this journey (to the point I wonder if that’s been my biggest win?).
Checking in with needs and wants is where I started (after 20’years of suffering).
My most desperate need was for support (took me a while to realise this was of the emotional kind); someone to gift me their time. Both unmet needs from childhood.
When I met my bodywork therapist, he didn’t have anything at all to say about chronic illness or my beliefs I could heal myself. It was this that made me believe he knew what he was on about😆😂 He was the only person I’d met that didn’t have an opinion - of any kind. He listened. A massive healing in itself💜
I’m so glad I found you! What a great post. I write about living with Parkinson’s so I understand the challenge of hiding it and owning it. I always keep in mind that I’m not obliged to tell my story to anyone. If they earn it, cool. It helps separate out the riff raff 😜
Thank you for the mention. ‘Woo woo’ made me giggle, I’m very naturally sceptically and that tends to override my, also natural, curiosity. It’s a hard juggle indeed.