Disability and Determination is a weekly newsletter about my experience living with a rare disability (with a little bit of meditation, pop culture, and other random things thrown in).
As a person (and a parent) dealing with pre-existing conditions and disability in our family--I am terrified of what will happen to the ACA and then also the utter disregard for vaccines that protect so many of us... It's so hard not be angry. I'm finally coming into a place of... whatever I can do to calm my nervous system and preserve energy for the long haul, but oof.
100% to all of that. I already had to cut back on what I do because of COVID, if we get rid of vaccines...god help us all. I'll be a full time hermit. That's great you're at a place of doing whatever you can to calm your nervous system and preserve energy. That's so important anyway but especially now and with 2025 approaching. It really is so hard not to be angry but also important we take care of us too. Sending hugs.
I'm sitting in my office today with the co-president and another partner in from our main office wearing a mask, because they were just in SF for a conference and got on a plane to get here. Lunch is on its way and I won't be dining with them, either. I'll go in after I hoover my meal to visit and be cordial, but I explained I take this seriously and they basically said, Do you; we're not judging. I mean, next year, we may not even have a vax for the next mutation, let alone the bird flu. Still...
Don't let them take away your goodness, Jackie. Don't let them stop you from being happy and living your life. We had a dress rehearsal for this before and, yes, the script has been rewritten in a totally sh!t way, so all of this feels too familiar. Still...we don't want them to steal us, too. We'll just take it one step, one day at a time, doing our best. We can't live in their world of hate and stupidity. We have to fortify our world of logic, love and sanity. Won't be easy, but I think we can. I thing we should. We sort of must. xo
Yeah the no vax thing is beyond terrifying. I really won’t be able to leave the house then. But perfectly said. I try to keep reminding myself that by letting all this get to me, I’m letting them win more. In the words of the illustrious Beyoncé, “you won’t break my soul”. Even when I have to see Trump stickers, flags and hats every frickin time I leave the house 😬
As a person (and a parent) dealing with pre-existing conditions and disability in our family--I am terrified of what will happen to the ACA and then also the utter disregard for vaccines that protect so many of us... It's so hard not be angry. I'm finally coming into a place of... whatever I can do to calm my nervous system and preserve energy for the long haul, but oof.
100% to all of that. I already had to cut back on what I do because of COVID, if we get rid of vaccines...god help us all. I'll be a full time hermit. That's great you're at a place of doing whatever you can to calm your nervous system and preserve energy. That's so important anyway but especially now and with 2025 approaching. It really is so hard not to be angry but also important we take care of us too. Sending hugs.
I'm sitting in my office today with the co-president and another partner in from our main office wearing a mask, because they were just in SF for a conference and got on a plane to get here. Lunch is on its way and I won't be dining with them, either. I'll go in after I hoover my meal to visit and be cordial, but I explained I take this seriously and they basically said, Do you; we're not judging. I mean, next year, we may not even have a vax for the next mutation, let alone the bird flu. Still...
Don't let them take away your goodness, Jackie. Don't let them stop you from being happy and living your life. We had a dress rehearsal for this before and, yes, the script has been rewritten in a totally sh!t way, so all of this feels too familiar. Still...we don't want them to steal us, too. We'll just take it one step, one day at a time, doing our best. We can't live in their world of hate and stupidity. We have to fortify our world of logic, love and sanity. Won't be easy, but I think we can. I thing we should. We sort of must. xo
Yeah the no vax thing is beyond terrifying. I really won’t be able to leave the house then. But perfectly said. I try to keep reminding myself that by letting all this get to me, I’m letting them win more. In the words of the illustrious Beyoncé, “you won’t break my soul”. Even when I have to see Trump stickers, flags and hats every frickin time I leave the house 😬
Just wait until they meet the consequences of their actions. It’s going to be a sight to behold.💗 xo
😷💕🫂